Saturday, August 29, 2009

Did ya miss me?

I just read a really great post at Extreme Retirement. He talks about all his interests and the cycles he goes through with them. I guess that is what is going on with me. I just never thought it through.

Anyway, my daughter, the one with full fledged autism, broke her PCA's car while I was out of town last Friday. They were at Walmart arguing about a video. To say the least I was not happy but at least when she kicked the windshield she didn't break it. She broke mine years ago.

At least everyone is listening to me now. The provider company isn't happy about paying the bill to fix it. We came up with a schedule to meet her needs instead of what everyone else wants. Schedules are one of those accommodations that help some people with autism. Or at least my people with autism. Let's see how that goes....

Tuesday, August 4, 2009

More Places to Get Equipment and Therapy

Of course there are the typical systems for people to get equipment. It is possible to get medically necessary equipment with a prescription through Medicaid if your family qualifies. Unfortunately to qualify your family is usually poor. You may be surprised at what your states definition is of ‘poor’. Some states also have a system that some parents can ‘buy’ into Medicaid when they have a child with a disability.

In Louisiana a person automatically gets Medicaid if they receive Social Security (SSI). In other states there are two separate processes. Some people can have insurance and Medicaid. The private insurance is the primary and Medicaid is the secondary. It gets complicated and requires strict attention to the paperwork but it is possible to get equipment this way.

Your state also has an office responsible for, as much as I hate to use this term, Mental Retardation. It is called different things in Louisiana it is called the Office for Citizens with Developmental Disabilities (OCDD). In some sections of Louisiana it can also be found in the Human Services District Office. This is another resource for equipment. These offices have a small amount of money that can be allocated, at times, for equipment or therapy for your child.

Parents have discovered another way to get equipment that they need for their children is to trade equipment with other families. Some trade groups just put up what they have to give and let anyone else that needs that equipment or tool get it. Other groups have a point system and keep track in some way of what they trade. Sort of like a babysitting co op. The secretary usually gets a small amount with each exchange for doing the math and recordkeeping. This system appeals to some people because they get ‘value’ for what they have. Other people don’t care.

Out of The Ordinary Places to Get...

Sunday, August 2, 2009

Important Reasons to Get Early Help If Your Child May Have Autism

Although a parent might not have a diagnosis early on, it is imperative to start intervention early if you suspect your child may have autism. As any parent knows children acquire huge amounts of information while they are the youngest. From crawling, to walking, to talking, to toilet training those first three to five years are packed and when a child seems to learn the fastest. Because of this ability to learn fast it is important to start with therapies as young as possible.
In this manner it is easier to build on strengths. One of the ways a child with any disability will learn to cope is to strengthen the skills that they find easy. Those early strengths can be used to motivate children as well.
In the case of poor behaviors it is easier to learn acceptable behaviors first of course. Learning how to teach a child with a different way of understanding is important. Nest it is easier to stop unwanted behaviors and teach replacement behaviors before they become ingrained. Unfortunately many people only look for help after everyone seems to be locked into a system of unproductive behaviors, whether the behavior is the parent’s or the child’s.
Equipment or tools are also easier to develop while a child is young. Teaching a child to use a communication board or communication cards while younger is critical. In the process the young child is taught to make choices. Later when or if a system of communication is needed it will be easier and quicker to go to the next step.
One of the surprising reasons that you will want to get help if you child might have autism is to help yourself. Parents of children with asd need to be able to think outside the box. Whether responding to odd behaviors or figuring out a different way to teach a concept, we need to be able to think in a different way.
Finally the last reason to get help is to develop the systems that will support you and your child early. Some of these systems will take years to fully develop so getting an early start no matter what the diagnosis is critical.

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